{"product_id":"👀睇電影-無名指-my-first-of-may-慈善場🎬罕病家庭共鳴","title":"Charity Screening of “My First of May”🎬A Film That Resonates Deeply with Families Facing Rare Diseases🥹","description":"\u003cp\u003e\u003ciframe width=\"100%\" style=\"aspect-ratio: 16 \/ 9;\" src=\"https:\/\/www.youtube.com\/embed\/x9HNKYVe5I8\" title=\"👀睇電影 無名指 My First of May #慈善場🎬罕病家庭共鳴🥹\"\u003e\u003c\/iframe\u003e\u003c\/p\u003e\n\u003cp\u003e\u003cimg src=\"https:\/\/cdn.shopify.com\/s\/files\/1\/0651\/3934\/3478\/files\/68db77577ba571.jpg?v=1763343055\" alt=\"\"\u003e\u003c\/p\u003e\n\u003ch4\u003eThe film that touches on the rare disease #SpinalMuscularAtrophy has just premiered, and already families affected by rare conditions have expressed interest in watching it.\u003c\/h4\u003e\n\u003ch4\u003eHuge thanks to volunteer Nathan’s parents for helping connect the dots behind the scenes.\u003c\/h4\u003e\n\u003ch4\u003eGrateful to Codex Genetics, #AvenueFinancialGroup and Rare Power Limited for their generous support.\u003c\/h4\u003e\n\u003ch4\u003eLast Saturday, we hosted a private charity screening of #MyFirstOfMay at #K11ArtHouse, inviting families living with rare diseases to enjoy the film together.\u003c\/h4\u003e\n\u003ch4\u003eThe movie sheds light on the challenges faced by rare disease patients and their caregivers, offering a heartfelt portrayal of their journey.\u003c\/h4\u003e\n\u003ch4\u003eIt also features a special cameo by Wai Kwan and Chan Tsz Kin who suffering Duchenne Muscular Dystrophy.\u003c\/h4\u003e\n\u003cp\u003e\u003cimg src=\"https:\/\/cdn.shopify.com\/s\/files\/1\/0651\/3934\/3478\/files\/68db77be97cbc1.jpg?v=1763343306\" alt=\"\"\u003e \u003cimg src=\"https:\/\/cdn.shopify.com\/s\/files\/1\/0651\/3934\/3478\/files\/68db77d8ad72c1.jpg?v=1763343055\" alt=\"\"\u003e\u003c\/p\u003e\n\u003ch4\u003eMany in the audience were moved to tears, reaching for tissues as they watched the film.\u003c\/h4\u003e\n\u003ch4\u003eDuring the post-screening sharing session, Gigi’s mother—whose son lives with spinal muscular atrophy—deeply resonated with the lines spoken by the mother character portrayed by #GigiLeung.\u003c\/h4\u003e\n\u003ch4\u003eThe film’s protagonist, who loves to draw, reminded YY’s mother of her own daughter, who shares the same passion for art.\u003c\/h4\u003e\n\u003ch4\u003eProfessor Ho Yin Chan, co-founder of Rare Power and professor at the School of Life Sciences, Faculty of Science, CUHK, shared his insights from years of rare disease research.\u003c\/h4\u003e\n\u003ch4\u003eSeveral rare disease patients seized the opportunity to surround the professor and seek his advice.\u003c\/h4\u003e\n\u003ch4\u003eWe hope there will be more opportunities like this in the future to connect, reflect, and share.\u003c\/h4\u003e\n\u003ctable width=\"100%\"\u003e\n\u003ctbody\u003e\n\u003ctr\u003e\n\u003ctd\u003e\u003c\/td\u003e\n\u003c\/tr\u003e\n\u003ctr\u003e\n\u003ctd\u003e\n\u003ctable width=\"100%\"\u003e\n\u003ctbody\u003e\n\u003ctr\u003e\n\u003ctd\u003e\u003cimg src=\"https:\/\/cdn.shopify.com\/s\/files\/1\/0651\/3934\/3478\/files\/68db7812567d31.jpg?v=1763343053\" alt=\"\"\u003e\u003c\/td\u003e\n\u003c\/tr\u003e\n\u003ctr\u003e\n\u003ctd\u003e\u003cimg src=\"https:\/\/cdn.shopify.com\/s\/files\/1\/0651\/3934\/3478\/files\/68db78c2d08841.jpg?v=1763343053\" alt=\"\"\u003e\u003c\/td\u003e\n\u003c\/tr\u003e\n\u003ctr\u003e\n\u003ctd\u003e\u003cimg src=\"https:\/\/cdn.shopify.com\/s\/files\/1\/0651\/3934\/3478\/files\/68db78e241e341.jpg?v=1763343306\" alt=\"\"\u003e\u003c\/td\u003e\n\u003c\/tr\u003e\n\u003ctr\u003e\n\u003ctd\u003e\u003cimg src=\"https:\/\/cdn.shopify.com\/s\/files\/1\/0651\/3934\/3478\/files\/68db7902711021.jpg?v=1763343306\" alt=\"\"\u003e\u003c\/td\u003e\n\u003c\/tr\u003e\n\u003c\/tbody\u003e\n\u003c\/table\u003e\n\u003c\/td\u003e\n\u003c\/tr\u003e\n\u003c\/tbody\u003e\n\u003c\/table\u003e","brand":"Lifewire HK","offers":[{"title":"Default Title","offer_id":42766218920054,"sku":null,"price":2370.0,"currency_code":"HKD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0651\/3934\/3478\/files\/68db77d8ad72c1.jpg?v=1769757397","url":"https:\/\/www.lifewire.hk\/en\/products\/%f0%9f%91%80%e7%9d%87%e9%9b%bb%e5%bd%b1-%e7%84%a1%e5%90%8d%e6%8c%87-my-first-of-may-%e6%85%88%e5%96%84%e5%a0%b4%f0%9f%8e%ac%e7%bd%95%e7%97%85%e5%ae%b6%e5%ba%ad%e5%85%b1%e9%b3%b4","provider":"Lifewire HK","version":"1.0","type":"link"}