{"product_id":"罕友-燃愛-童catwalk","title":"【罕友‧燃愛‧童catwalk】","description":"\u003cp\u003e\u003ciframe width=\"100%\" style=\"aspect-ratio: 16\/9;\" src=\"https:\/\/www.youtube.com\/embed\/8kZ6VueBnzE\" title=\"🌳【 罕友·燃愛·童Catwalk 】🌳\"\u003e\u003c\/iframe\u003e\u003c\/p\u003e\n\u003cp\u003e\u003cimg src=\"https:\/\/cdn.shopify.com\/s\/files\/1\/0651\/3934\/3478\/files\/01_d02fabc3-4cdf-440d-9c5c-41ebe5f76366.jpg?v=1770862793\" alt=\"\"\u003e\u003c\/p\u003e\n\u003ch4\u003e天氣時晴時雨，就像罕見病童的命運。\u003cbr\u003e \u003cbr\u003e童年本應無憂無慮，惟社會上卻有一群大小朋友，每天受盡罕見疾病折磨、威脅生命，連呼吸都是奢侈。但他們不言放棄、勇敢追夢，只為活出精彩的一片天！\u003cbr\u003e \u003cbr\u003e一群來自各界包括設計界、公關界、環保界等義工，特地為他們度身創作時裝，採用環保物料製作，破天荒地在農莊舉行罕見病友時裝騷，一展光芒，為他們圓夢！\u003cbr\u003e \u003cbr\u003e今日天氣未盡人意，但大家仍不懼風雨為罕見病童圓夢，然而時晴時雨的天氣，就像罕病童家庭的命運-在崎嶇的命途上，冒雨前行，幸而天公造美，就在catwalk開始前，天空驟然放晴。\u003cbr\u003e這班catwalk的罕友來自《護‧聯網》Lifewire，他們不少需以輪椅代步，包括患有脊髓肌肉萎縮症、全身只有幾根手指能郁動的女孩；有抽搐無間，全港唯一病例的男孩；甚至姊弟同患絕症，全球僅兩宗的病患家庭等。\u003cbr\u003e \u003cbr\u003e他們身上的服裝，是一群義工在聆聽罕見病患者的故事和夢想後，為他們設計出的獨一無異時裝，再以環保重生物料製作，讓罕見病患者變身模特兒，在「和平農莊」的大自然環境下表現自我，一嚐行天橋的滋味。\u003cbr\u003e他們之後更在農莊親手種植以自己命名的聖誕樹，再廣傳社會，寓意生命的延續、以愛相傳，繼續發光發亮！\u003cbr\u003e \u003cbr\u003e活動邀得前「包山王」輪椅攀爬教練黎志偉先生、首位榮獲世界脊骨神經科聯合會頒發最高榮譽的華人朱君璞醫生、香港移植運動協會名譽會長周嘉歡醫生、聖約翰救傷隊前總監馬正興醫生、捐血紀錄保持者關錫堯先生及聯合國教科文組織(香港)和平中心理事Mr. Thirupathi Nachiappan擔任主禮嘉賓。\u003cbr\u003e \u003cbr\u003e活動喚起大眾對罕見病的關注，加深對一班病患者和家人背後故事的了解，推廣生命教育，以生命影響生命，啟發對生命的體悟，同時增加對環保生活的認識！\u003c\/h4\u003e\n\u003ctable width=\"100%\" cellpadding=\"0\" cellspacing=\"0\" style=\"border-collapse: collapse; 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