📢 SMA Sum-yuet's joy: Finally able to "stand" and see the world! 👧🏻✨
2026-04-10
Recently, Lifewire helped her purchase a standing frame. For Yan-yuet, the standing frame is more than just a piece of equipment; it is truly her "secret weapon" for improving bone health. Being in a wheelchair for a long time has placed a heavy burden on her bones and joints, leading to complications. Now, with the help of the standing frame, she can regularly "stand up" to stretch every day. Beyond relieving pressure on her bones, even her perspective has changed, and she feels more energized, which makes her very happy! Yan-yuet and her family are very grateful for everyone's support.
Countdown to life⏳ Continuing the mission with AI💡
2026-04-02
17-year-old "Snail Boy" Chan Tsz-kin was diagnosed at 18 months old with a rare disease: Duchenne muscular dystrophy. The average life expectancy for this condition is 18, yet young Tsz-kin has already learned to face life and death with composure. Although physically limited, he is not hindered by his grand dreams; he has trekked across deserts and challenged the sky and the sea. Last year, with the help of social workers and a tech company, he used artificial intelligence to create an "AI Tsz-kin."
Farewell UFO (Ciao UFO) Charity Screening: Witnessing an Urban Legend
2026-03-27
Inspired by Hong Kong’s Wah Fu UFO legend, this nostalgic coming-of-age film conveys hope and warmth, touching rare disease families deeply.
Artistic Heritage and Innovation: Congratulations to the three young artists for winning scholarships!
2026-03-06
Three young artists with disabilities shine through art, spreading warmth, culture, and hope for more to see their talent.
The First Handmade Dessert of the Year of the Horse: Dango Connecting Hearts
2026-03-05
Lifewire rare disease families and students made dango together, sharing stories to raise awareness for disabled children and their caregivers.
Opening red envelopes on the Lantern Festival 🧧 You-Zhen is finally able to control her wheelchair and smiles happily.
2026-03-03
Apart from eating tangyuan today for the Lantern Festival, tradition also dictates that keeping your red packets until this day helps "gather wealth." Sharing this joy with children suffering from rare diseases can also bring you blessings, just like in the case of Chan Yau-chun, who, like her second eldest sister, suffers from hereditary spastic paraplegia.
RareDiseaseChildren and over 600 participants gather for a Chinese New Year charity "Poon Choi" feast to share the warmth
2026-03-03
Hong Kong Caring Power held 62-table charity Poon Choi feast, uniting rare disease patients & those in need with joyful performances amid rain.
【Wishing you a prosperous Year of the Horse 🍊 taking the lead from the start】
2026-02-17
As we step into the Year of the Horse 🐎, the RARE-net and a group of children with rare diseases 👧🏻👦🏻👶🏻 wish everyone 🫶🏼: 🐴 Full of vigor, success in all your endeavors, and instant prosperity 💰 Let’s continue to walk together in the Year of the Horse ❤️
Celebrate Together and Share Good Fortune – $12,500 Cash Prize Filling the Venue with Cheers
2026-02-11
Lifewire celebrated its anniversary with 240+ guests, magic, games, lucky draws and kind sponsorships, welcoming the Year of the Horse.
A Grand Festive Gathering: Celebrating Ka-wa’s Rise to World Number One
2025-12-31
With Christmas, New Year’s Eve, and New Year’s Day arriving one after another, Lifewire took advantage of the festive season to host a celebration last night!
Hong Kong Premier League Hong Kong Island Derby - Children with Rare Diseases Kick Off
2025-12-17
Last Saturday at Siu Sai Wan Sports Ground, the Hong Kong Premier League Hong Kong Island Derby took place, featuring Eastern District Football Club vs. Kwoon Chung Southern District FC.