Student nurse battles rare brain cancer with three recurrences - Ian Tso

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Establish Date: 2026-07-15
Student nurse battles rare brain cancer with three recurrences - Ian Tso
A 19-year-old student nurse, full of passion to help others, was struck by a rare brain cancer just as she was starting her career. After enduring brain surgery, chemotherapy, radiation therapy, and a painful stem cell transplant, the cancer recurred twice. Following Gamma Knife treatment, the tumor miraculously shrank significantly, but the targeted medication she needs is not subsidized, costing nearly HK$140,000 per month. Her mother sold off all her assets, only managing to raise enough for the first month's medication. Fearing she might miss this chance for treatment, she urgently needs assistance from all sectors.

HKD $1,488,449.10 of $900,000

Brothers with Mucopolysaccharides -  Wai Cheung; Shing Hao

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Establish Date: 2023-08-14
Brothers with Mucopolysaccharides - Wai Cheung; Shing Hao
A seemingly simple wish is far from being fulfilled. A family of four with two lively and adorable sons was supposed to be a picture of a happy family, but it was suddenly discovered that both sons were suffering from the rare disease Mucopolysaccharidosis IIIA (MPS IIIA). The older brother's bodily functions and IQ had deteriorated to that of an infant, and he was unlikely to live past the age of 14. His parents only hope that the experimental stem cell therapy that his brother is receiving will reverse his condition.

HKD $68,990 of $400,000

Mind Trapped in Body - Ka-ki

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Establish Date: 2024-04-22
Mind Trapped in Body - Ka-ki
"Do you want pork chop rice or chicken chop rice? Look this way for pork chop rice," her mother says, shaking her left fist in front of Ka-ki’s eyes. "And look this way for chicken chop rice," she adds, shaking her right fist. Lying on the sofa, unable to speak or control her body, Chen Ka-ki scans her mother’s hands back and forth before finally resting her gaze on the left. With her eyes, she tells her mother her choice. Whether it is a meal choice or deciding between the wheelchair and the sofa, mother and daughter communicate through a constant series of multiple-choice questions. Yet, from the very moment Ka-ki entered this world, she was confronted with the ultimate choice of life: to live, or to die.

HKD $12,830 of $100,000

Mother and Child with the Same Disease: Rare Genetic Disorder ATAD3A - Wong Wei-long

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Establish Date: 2022-08-16
Mother and Child with the Same Disease: Rare Genetic Disorder ATAD3A - Wong Wei-long
"Roll camera, ready, ACTION!" At 18, with an "ageless" face, his body had degenerated before fully developing. Delayed treatment, repeated misdiagnoses, and two rare diseases brought endless surgeries and torment. The fourth case in Hong Kong, where both mother and son suffered from incurable illnesses. "I really don't dare to think about the worst-case scenario…" Thoughts of "am I completely useless?" sometimes surface, but more often, a cheerful inner drama unfolds daily. If life is a script, Wong Wai-lung's comedy is a blueprint for encouraging those around him to find joy amidst suffering.

HKD $253,865.92 of $300,000

Girl with Moyamoya Disease - Kwong Hoi Kei

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Establish Date: 2025-03-10
Girl with Moyamoya Disease - Kwong Hoi Kei
Standing 155 cm tall but weighing only 34 kg, the frail Kwong Hoi Kei lives under the debilitating shadow of Neurofibromatosis. Not only does she struggle to walk and rely on a wheelchair for mobility, but she also grows short of breath after just a short conversation. Her health is constantly threatened by fibromas growing in clusters along her nerves, which could deteriorate and lead to paralysis. Coupled with a septal defect (hole in the heart) and Moyamoya disease—which poses a constant risk of recurrent cerebral hemorrhaging—she lives with three "hidden bombs" inside her body, never knowing when or where they might explode.

HKD $0 of $600,000

Daughter with incurable disease - Ka Yan

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Establish Date: 2017-06-20
Daughter with incurable disease - Ka Yan
The rare disease “Rett Syndrome” is caused by mutations in the congenital gene MECP2. It is a neurological disease that seriously affects children’s psychomotor development. It cannot be prevented and there is no effective treatment.

HKD $831,336 of $900,000