Thanks to benefactor Anson for his continued sponsorship this year, and to cousin Wendy for helping to arrange a summer party for Lifewire children with rare diseases and special needs, so they could enjoy the summer!
Last Sunday, over a hundred family members gathered at the cinema to watch "The End Of Oak Street". The children were very excited when the dinosaurs appeared, exclaiming in surprise!
Lam Pok-yin's mother, whose son has Rubinstein-Taybi syndrome, said Pok-yin had a super fun time!
Chu Yan-hei, a high school student who has been unable to move below the neck and relies on a wheelchair since being diagnosed with Guillain-Barré syndrome several years ago, thanked the Lifewire team and volunteers for helping to lift her from her wheelchair to a cinema seat. It was her first time watching a movie out of her wheelchair since her illness, and she was very happy to have this breakthrough.
Afterward, everyone went to the hotel for a buffet and party~
Kwong Hoi-kei, who has Neurofibromatosis Type 1 and underwent a high-risk cervical tumor removal surgery in April, participated in a Lifewire event for the first time since her surgery. Her strength is better now than before: previously, she might drop chopsticks, but today, with her mother's support, she could slowly walk and carry food with both hands.
The party, of course, included the "guess the song" game, a favorite among our friends with rare diseases. Yiu Sum-yuet (Spinal Muscular Atrophy), Yeung Ka-ying (Spinal Glioma), Mok Ho-cheung (Fibroma), and Pok-yin's mother all answered quickly and accurately. Lifewire had prepared plenty of gifts and toys, so everyone, whether they guessed correctly, incorrectly, or not at all, went home with something.
Chan Ka-ki (Athetoid Cerebral Palsy), Chan Ka-wa (Hereditary Spastic Paraplegia), and Chan Yau-chun all had a great time. Ho-cheung even took gifts back to his dorm to share with his classmates.
Anson, currently in Malaysia, greeted the children with rare diseases via video call through Wendy. The children and adults also took the opportunity to take photos with Wendy.
Wendy hopes that this summer activity tradition will continue, and that everyone can stay energetic and healthy for future gatherings.
At the same time, thanks to every volunteer who contributed their time, effort, and sweat. Without your selfless dedication, the event would not have been possible, allowing our friends with rare diseases, who usually find it difficult to go out, to enjoy the summer!