HKU graduate with muscular atrophy - Tseung Wai Kwan

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Establish Date: 2024-01-26
HKU graduate with muscular atrophy - Tseung Wai Kwan
It started in primary school, when he began to fall frequently. Duchenne muscular dystrophy forced Wai-Kwun to learn to accept his condition: to accept life in a wheelchair, to accept that he couldn't pursue his dream career, that he couldn't hold a camera… but it couldn't make him accept giving up. "You can try many things. Don't let the illness make you feel like you can't do anything."

HKD $224,212.27 of $200,000

Rubinstein-Taybi Syndrome Boy - Lam Pok-yin

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Establish Date: 2023-02-24
Rubinstein-Taybi Syndrome Boy - Lam Pok-yin
"What's the next stop?" "Next stop is Long Ping, then Tin Shui Wai, Siu Hong..." In the West Rail carriage, 11-year-old Boyan read out the stations in his head, one by one, without even looking up. He had already memorized the entire line by heart. This was because Mrs. Lam, who single-handedly cared for her son who suffers from the rare disease Rubinstein-Taybi syndrome (RSTS), hoped her son, who has nearly 1900-degree myopia and is almost blind, would be well-prepared for the future: "It doesn't matter if he can't see things in the future. As long as he remembers all the stations, he can still get around by himself."

HKD $318,176.90 of $300,000

Polio Fighter - Li Wing-man

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Establish Date: 2022-07-07
Polio Fighter - Li Wing-man
Confined to a wheelchair, his breath is shallow; he is almost sixty, but weighs less than 50 pounds. Along with him is a "cat-whisker" oxygen cannula on his face. Without an oxygen machine, he wouldn't even have the chance to leave his home for follow-up appointments, and would even be close to death. He contracted polio as a child, and only his head and a few fingers have slight movement, yet he is still willing to inspire others with his own story. "I don't need help my whole life. If I can, and if I have the ability, I want to help others!"

HKD $267,988.02 of $200,000

Thumbelina - Law Tsz Yu

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Establish Date: 2022-04-07
Thumbelina - Law Tsz Yu
In Hans Christian Andersen's fairy tale, "Thumbelina" is tiny and delicate. This is sometimes used to describe patients with Russell-Silver syndrome, a rare disease characterized by developmental delays and small stature. However, in real life, they also face issues like limb length discrepancy, scoliosis, and feeding difficulties. For example, Ziyu has to inject growth hormones daily and deal with the side effects... until adulthood. Her mother tearfully said, "Being able to maintain her (Ziyu's) normal nutrition and normal growth already makes me very happy."

HKD $323,117.50 of $300,000

The Twitching "Vegetable" Boy - He Junjie

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Establish Date: 2020-08-31
The Twitching "Vegetable" Boy - He Junjie
A pair of dragon-phoenix twins were born; Mother's wish was to hold little hands with big hands and travel the world; From one and a half years old, these hands could not rest day or night; During the day, big hands held a small mouth, helping to clear phlegm from the throat; At night, big hands held small hands, sleeping by the edge of life and death; "I brought her into this world... she has the right to live... to experience this world!"

HKD $1,189,575.33 of $900,000

Tuberous Sclerosis Complex - Lam Chuk-yiu

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Establish Date: 2017-09-27
Tuberous Sclerosis Complex - Lam Chuk-yiu
I learn slower than others… I always attract strange looks… My brain is full of tumors, and my organs could fail at any moment, yet I can't express it… However, I can use my paintings to reveal my little-known inner world and give back to society with my talent. Can you feel it? I am Lam Cheuk-yiu (Yiu Yiu), who has tuberous sclerosis but is seen by my mother as a gift.

HKD $838,115.26 of $300,000