Siblings with rare diseases - Chan Ka Wa ; Chan Yau Chun

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Establish Date: 2020-01-07
Siblings with rare diseases - Chan Ka Wa ; Chan Yau Chun
This is a story of a family of five. Two children suffer from serious illnesses, but the family could only afford treatment for one. Overwhelmed by the devastating trials and tribulations, the mother of these children was later diagnosed with depression. This downturn of events is even more tragic than those in Korean dramas. But how did this family of five choose to face their hardship? With their courageous smiles.

HKD $825,557 of $900,000

Young Girl with Spinal Muscular Atrophy Chasing Dreams - Kwan Yi Lai

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Establish Date: 2019-07-10
Young Girl with Spinal Muscular Atrophy Chasing Dreams - Kwan Yi Lai
At 14 years old, she’s completely wheelchair-bound. Her estimated life expectancy? Only 18 years. “Everyone needs to face death one day,” she said as a matter of fact. Others around her are disheartened by her story, but this girl thinks she’s lucky. She’s even determined to become an expert in computer game development. “I won’t give up until I’ve reached my goal. I still want to remain in this world, even if all I can do is see with my eyes!” That’s Kwan Yi Lai, who suffers from spinal muscular atrophy.

HKD $590,787 of $650,000

母子同病變:罕見遺傳病ATAD3A - 黃偉龍

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Establish Date: 2022-08-16
母子同病變:罕見遺傳病ATAD3A - 黃偉龍
「Roll機,準備,ACTION!!」 18歲,有着長不大的「童顏」;全因尚未發育,已先退化; 延醫、連番誤診、雙重罕見病,帶來無盡的手術與折磨; 全港第四宗,原來兩母子同患不治症,「最壞打算我就真係唔敢講……」 偶浮出「係咪自己好冇用」念頭,惟更多的是,每天上演的樂天內心小劇場; 若人生是一齣劇本,黃偉龍編導演的喜劇,就是鼓勵着身邊人苦中作樂的藍本。

HKD $253,465.92 of $300,000

鬼門關搶救肌萎兒 - 楊鈞澈(楊君臨)

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Establish Date: 2021-09-24
鬼門關搶救肌萎兒 - 楊鈞澈(楊君臨)
「我諗住長命百歲!」 5歲確診肌肉萎縮的君臨,昏迷前的這句話,驅使媽媽決心把他搶救過來。 能伴隨兒子走到最後一刻,已是媽媽的最大回報。 「你一日喺度,我一日都會喺你身邊照顧你,知唔知呀!」

HKD $700,774.95 of $600,000

長不大的天使 - 陳詠寧

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Establish Date: 2018-04-03
長不大的天使 - 陳詠寧
她,愛咧嘴而笑,卻不懂說話; 她,四肢健全,卻不能自理; 天使讓人既憐且懼,全因罕見得無法根治,欲救無從; 小天使無畏無懼,落入凡間,為平凡的夫婦展開不平凡的人生。

HKD $827,102.16 of $600,000

Daughter with incurable disease - Ka Yan

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Establish Date: 2017-06-20
Daughter with incurable disease - Ka Yan
The rare disease “Rett Syndrome” is caused by mutations in the congenital gene MECP2. It is a neurological disease that seriously affects children’s psychomotor development. It cannot be prevented and there is no effective treatment.

HKD $831,336 of $900,000