Causes
Causes of Rare Diseases
There are hundreds of people close to us seeking medical funding support. With your generosity and their courage, together we can make miracles happen.

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Establish Date: 2021-06-07
Child with Muscle atrophy - Lok Chun-Ting
“Mummy…” His mother hurries to come and fit the tube for him.
“Mummy…” His mother rushes to come and turn him around.
“Mummy…” His mother stretches out a hand to switch the TV channel for him while busily taking care of his younger siblings.
He is 11 years old, with normal intelligence, but an abnormal body.
“Do you know what disease you have?” The naive little boy answered with his slightly weak voice, “ I don’t know.”
All he knows is that he experiences all these - lying on the bed all the time with different tubes connecting him to a ventilator and entering his stomach through a gastrostomy and so on – just to survive.
HKD $557,499 of $600,000

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Establish Date: 2025-03-10
Girl with Moyamoya Disease - Kwong Hoi Kei
Standing 155 cm tall but weighing only 34 kg, the frail Kwong Hoi Kei lives under the debilitating shadow of Neurofibromatosis. Not only does she struggle to walk and rely on a wheelchair for mobility, but she also grows short of breath after just a short conversation. Her health is constantly threatened by fibromas growing in clusters along her nerves, which could deteriorate and lead to paralysis. Coupled with a septal defect (hole in the heart) and Moyamoya disease—which poses a constant risk of recurrent cerebral hemorrhaging—she lives with three "hidden bombs" inside her body, never knowing when or where they might explode.
HKD $0 of $600,000

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Establish Date: 2024-04-22
Mind Trapped in Body - Ka-ki
"Do you want pork chop rice or chicken chop rice? Look this way for pork chop rice," her mother says, shaking her left fist in front of Ka-ki’s eyes. "And look this way for chicken chop rice," she adds, shaking her right fist. Lying on the sofa, unable to speak or control her body, Chen Ka-ki scans her mother’s hands back and forth before finally resting her gaze on the left. With her eyes, she tells her mother her choice.
Whether it is a meal choice or deciding between the wheelchair and the sofa, mother and daughter communicate through a constant series of multiple-choice questions. Yet, from the very moment Ka-ki entered this world, she was confronted with the ultimate choice of life: to live, or to die.
HKD $12,830 of $100,000

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Establish Date: 2024-01-26
肌萎港大畢業生 - 蔣衞錕
由小學突然經常跌倒開始,
杜興氏肌肉營養不良症迫衞錕學懂接受,
接受以輪椅為伴、做不了夢想職業、拿不起相機……
但卻不能令他接受--放棄:
「好多嘢都可以嘗試,唔好因為個病就覺得所有嘢都做唔到。」
HKD $70,371 of $200,000

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Establish Date: 2022-07-07
小兒麻痺鬥士 - 李榮文
長坐輪椅,氣若游絲;年近六旬,但體重不足50磅;
長伴他的,還有掛於臉上輸送着氧氣的「貓鬚」;
沒有氧氣機,他連踏出家門覆診也沒機會,甚至幾近沒命;
自小患上小兒麻痺症,全身僅頭部及幾根手指輕微活動,惟他仍樂意以自身故事燃亮他人;
「我唔係一世都要人幫,做得到嘅,有能力嘅要去幫人!」
HKD $141,570 of $200,000

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Establish Date: 2020-08-31
抽搐無間「植物」男孩 - 何俊杰
龍鳳胎呱呱落地;
媽媽心願是大手握小手,遊歷世界;
一歲半起,這雙手,日夜也未能歇息;
白天,大手握小嘴,送走嚨中痰;
晚上,大手握小手,陪睡生死邊緣;
「我帶佢嚟呢個世界......佢有生存權利......感受呢個世界!」
HKD $894,705 of $900,000
