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羅素西弗氏症  羅紫羽

【The little princess melted by love】

 

As the pandemic slows down, Lifewire can go and interview families with rare diseases again.

 

Last month, we interviewed #羅紫羽 who suffers from #Russell-Silver Syndrome

 

When we first met 羅紫羽, she did not seem attentive and sometimes ignored her mother, she was also extremely picky about food.....But after listening to her mother's explanation we learned that children with this disease have to survive using needles every day to help grow as they develop slowly, where they have long and short limbs and a lack of appetite...

 

In addition, 紫羽 herself has a delay in learning, stranger anxiety, not good at communication and easily misunderstood. 

 

羅素西弗氏症 嘅 #羅紫羽
羅素西弗氏症 羅紫羽 父母

After the Lifewire team patiently talked with 紫羽, she slowly let her guard down and had a great time together.


In fact, as long as we understand the uniqueness of the patients and listen carefully to their voices,
The shy little princess can also be melted by love

 

The full interview will be available later, stay tuned to our Facebook page @lifewirehongkong,please follow and like! 

羅素-西弗氏症 羅紫羽 

 

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