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「愛不罕見2017-雷特氏症」活動開幕禮
Date: February 25, 2017
Location: City University of Hong Kong
受城巿青年商會邀請,Lifewire成為支持機構,為罕見疾病組織出一分力。在香港每1.2萬人就有一個人患上雷特氏症。透過活動增加香港市民對罕見病、患者、照顧者及家屬的認識,促進病友發揮互助自助精神,積極活出豐盛人生。
Invited by the Junior Chamber International City Hong Kong, Lifewire becomes a supporting organization to help other rare disease organizations. In Hong Kong, one in every 12,000 people suffers from Rett syndrome. Through activities, the public in Hong Kong will have a better understanding of rare diseases, patients, caregivers and family members, and be encouraged to help each other and live a fulfilling life.
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